Every 40 seconds an American child or young adult enters an emergency department suffering from a brain injury; the leading experts in our nation dealing with brain injuries have come up with a broad-based, bi-partisan plan to prevent, identify and treat our American youth with over 110 Membersof Congress already endorsing it; however Democratic Congressman Frank Pallone from New Jersey and a few of his colleagues on the Energy and Commerce Committee refuse to even allow an up-or-down vote. We are asking you to join our efforts and become a Voice For My Child and urge Congressman Pallone to allow H. Con. Res. 198 an up-or-down vote in the Congress!
Summary of H. Con. Res. 198
Every year millions of American children and young adults up to 25 years of age acquire a new brain injury which makes it the #1 leading cause of death and disability by far (i.e., the total cumulative cases of autism in the entire country is between 565,000 – 1.2 million). Every time this happens to a family they are stuck having to reinvent the system of care for their child and family. The system of care is arbitrary from state to state, random from school district to school district and completely haphazard from one doctor’s office to another.
The causes of Pediatric Acquired Brain Injury can be from trauma (such as motor-vehicle crashes, falls, sports-related concussions, child abuse/shaken baby syndrome, blast injury from war, etc…) as well as non-traumatic causes (such as strokes, meningitis, brain tumors, near-drownings, etc…).
The Sarah Jane Brain Foundation (SJBF) brought together more than 75 of the leading doctors, researchers and family advocates to New York City the first week of January 2009, to complete the first-ever National Pediatric Acquired Brain Injury Plan (PABI Plan) which develops a seamless, standardized, evidence-based, system of care that is universally accessible for these PABI families.
In June 2009, SJBF announced the largest healthcare collaboration in U.S. history dealing with PABI by announcing one State Lead Center for every state plus D.C. and Puerto Rico to develop a Master PABI Plan for their respective state (since every state is different). While expanding the International Advisory Board to over 200 experts worldwide, SJBF also received letters of support about the PABI Plan from the American Academy of Pediatrics, the American Academy of Cerebral Palsy and Developmental Medicine and the American Academy of Neurology.
Having established a national professional and family consensus around the PABI Plan, the next step was creating a national political consensus around the PABI Plan. SJBF had already begun receiving letters of support from US Senators (Cornyn, Kerry, McCain, Inhofe, Landrieu, Lieberman, etc…) and many US Representatives from across the country.
On October 13, 2009, H. Con. Res. 198 was introduced by Rep. G.K. Butterfield (D-NC1) along with 47 original co-sponsors. H. Con. Res. 198 was referred to the House Energy and Commerce Committee and SJBF was instructed we needed to secure 100 co-sponsors (20 of them from E/C Committee) in order for the measure to move through the E/C Committee and be afforded and up-or-down vote in the full House.
H. Con. Res. 198 states the following, “Resolved by the House of Representatives (the Senate concurring),That Congress –
1. Recognizes that Pediatric Acquired Brain Injury (PABI) is the leading cause of death and disability in the United States for children and young adults up to 25 years of age;
2. Endorses the National Pediatric Acquired Brain Injury Plan as the method to prevent future PABIs and treat all children and young adults suffering from a PABI while supporting their families; and
3. Encourages all Federal, State and local governments to implement the PABI Plan.
Since March 4, 2010, H. Con. Res. 198 has had over 100 bi-partisan co-sponsors from 40 different states (20 from the E/C Committee). Since then, Representative Frank Pallone (D-NJ6) who is the Subcommittee Chairman on Health and several other Members and their staff have been holding the measure up by demanding that the wording be changed to completely gut the original intent of the measure: create a national political consensus around the PABI Plan!
For greater details on the history of H. Con. Res. 198, please visit www.TheBrainProject.org/lettertopallone.php
Click here to read the full-text of H. Con. Res. 198
I Craig Sears a traumatic brain injury survivor Together with VOICE FOR MY CHILD will be holding accountable the following Members of the U.S. House Energy and Commerce Subcommittee on Health who are refusing to allow an up-or-down vote on H. Con. Res. 198:
U.S. Representative Frank Pallone (D-NJ), Chairman - first TV commercial focusing on Mr. Pallone: click here
U.S. Representative Bruce Braley (D-IA)
U.S. Representative Lois Capps (D-CA)
U.S. Representative Kathy Castor (D-FL)
U.S. Representative John Dingell (D- MI)
U.S. Representative Eliot Engel, (D-NY)
U.S. Representative Charlie Gonzalez (D-TX)
U.S. Representative Jim Matheson (D-UT)
U.S. Representative Chris Murphy (D-CT)
U.S. Representative Mike Ross (D-AR)
U.S. Representative John Sarbanes (D-MD)
U.S. Representative Zack Space (D-OH)
U.S. Representative Betty Sutton (D-OH)
U.S. Representative Anthony Weiner (D-NY)
The Sarah Jane Brain Foundation
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Phone# 212.576.1180 email: email@example.com