In Photos: Patrick Donohue, Congressman Leonard Lance, Craig Sears, Sarah Jane
If you happened to be in New Jersey yesterday morning and was able to be part of history, joining Congressman Leonard Lance, Barbara Geiger-Parker (CEO of the Brain Injury Association of New Jersey), Alan Leiber (CEO of Overlook Medical Center) Patrick Donohue, Craig Sears, Sarah Jane Donohue and other families, advocates and professionals as we announced the PABI Plan Act (see media advisory below)
Sarah Jane’s belated-Birthday Present
Bi-Partisan Federal Legislation Announced to Implement National PABI Plan
Summit, NJ – Congressman Leonard Lance (NJ-7) will announce federal legislation to implement the National Pediatric Acquired Brain Injury Plan (PABI Plan) at Overlook Medical Center on Thursday, June 30, 2011. Patrick Donohue and his six-year-old daughter, Sarah Jane, the namesake of the Sarah Jane Brain Foundation, along with other brain injury survivors, advocates and professionals will join Rep. Lance at the announcement. The PABI Plan was created by the International Advisory Board of the Sarah Jane Brain Foundation. The PABI Plan was endorsed by over 100 Members of Congress who served as co-sponsors of H.Con.Res. 198 during the 111th Congress.
Sarah Jane’s 6th birthday was June 5, 2011, so this announcement is Patrick’s belated birthday present to her. On June 5, 2009, Patrick’s 4th birthday present to Sarah Jane was announcing the largest healthcare collaboration in U.S. history dealing with PABI (one institution in all 50 states plus D.C. and Puerto Rico was announced as Sarah Jane Brain Foundation State Lead Centers of Excellence). See previous announcement here: www.TheBrainProject.org/thisnews.php?id=21
The National Pediatric Acquired Brain Injury Plan Act (PABI Plan Act) will fund a seven-year national initiative to implement the PABI Plan which develops a seamless, standardized, evidence-based system of care that is universally accessible for the millions of American families that have a child/young adult suffering from an acquired brain injury. Here is a link to PABI Plan Act:
www.TheBrainProject.org/PABIPlanAct.php. The PABI Plan Act will fund State Lead Centers of Excellence in every state plus the District of Columbia and Puerto Rico to:
1) Develop a system to collect data throughout their state across the continuum of care from prevention, acute medical treatment after the brain injury, reintegration back into the homes, schools and communities upon discharge from the medical facility and then transitioning into an adult system of greater independence
2) Develop a system of dissemination throughout their state of evidence-based, best practices across the continuum of care
3) Provide a specialized case management system for all PABI families in their state
4) Provide regional or national leadership role in one of the seven Categories of Care within the PABI Plan (Prevention, Acute Phase, Reintegration Phase, Adult Transition Phase, “mild” TBI, Rural/Tele-health and The Virtual Center)
WHAT: News conference announcing PABI Plan Act
WHERE: Overlook Medical Center, Child Life Room, Pediatrics – 6th Floor
99 Beauvoir Avenue, Summit, New Jersey
WHEN: Thursday, June 30, 2011, 10:30-11:30 a.m.
Quick Facts about PABI:
1) PABI is the #1 leading cause of death and disability for American youth
2) PABI is caused by
A) Trauma: traumatic brain injury (TBI), such as motor vehicle crashes, abusive head trauma/Shaken Baby Syndrome, sports-related concussions, falls, gun shot wounds, blast injury from war, etc…
B) Non-trauma: strokes, brain tumors, meningitis, seizures, near-drowning, etc…
3) Over 765,000 American youth enter an Emergency Department annually with a new TBI
4) Over 80,000 American youth are hospitalized annually with a new TBI
5) Over 11,000 American youth die annually due to TBI
6) These numbers do not reflect the significantly greater number of TBI cases that are not identified nor the number of non-traumatic acquired brain injuries
7) Upwards of 80% of the youth in juvenile detention centers across America have some form of a brain injury
For more information about Sarah Jane and The Sarah Jane Brain Foundation please visit the website www.TheBrainProject.org or read the letter from Patrick Donohue to Sarah Jane when she turned five: www.TheBrainProject.org/lettertosarahjane.php.
During the 111th Congress, over 100 Members endorsed the PABI Plan by serving as a Co-Sponsor of H. Con. Res. 198 which stated, “That Congress—
1) Recognizes that Pediatric Acquired Brain Injury (PABI) is the leading cause of death and disability in the United States for children and young adults from birth up to 25 years of age;
2) Endorses the National Pediatric Acquired Brain Injury Plan as the method to prevent future PABIs and treat all children and young adults suffering from a PABI while supporting their families; and
3) Encourages all Federal, State and local governments to implement the PABI Plan.”
The following 110 Members signed on as Co-Sponsors of H. Con. Res. 198 in the 111th:
Abercrombie, Neil; Baldwin, Tammy; Barrow, John; Bishop, Sanford D., Jr.; Blackburn, Marsha; Blumenauer, Earl; Bonner, Jo; Brown, Corrine; Brown, Henry E., Jr.; Brown-Waite, Ginny; Burgess, Michael C.; Buyer, Steve; Calvert, Ken; Camp, Dave; Carnahan, Russ; Carney, Christopher P.; Castle, Michael N.; Chandler, Ben; Christensen, Donna M.; Clarke, Yvette D.; Cleaver, Emanuel; Cohen, Steve; Connolly, Gerald E. “Gerry”; Costello, Jerry F.; Courtney, Joe; Cuellar, Henry; Cummings, Elijah E.; DeGette, Diana; Delahunt, Bill; Diaz-Balart, Lincoln; Forbes, J. Randy; Foster, Bill; Frank, Barney; Fudge, Marcia L.; Green, Al; Green, Gene; Grijalva, Raul M.; Hall, Ralph M.; Harman, Jane; Hastings, Alcee L.; Herseth Sandlin, Stephanie; Himes, James A.; Hinchey, Maurice D.; Hirono, Mazie K.; Holt, Rush D.; Israel, Steve; Jackson Lee, Sheila; Jackson, Jesse L., Jr.; Jenkins, Lynn; Johnson, Henry C. “Hank,” Jr.; Kagen, Steve; Kennedy, Patrick; Kildee, Dale E.; Lance, Leonard; Lewis, John; LoBiondo, Frank A.; Loebsack, David; Lynch, Stephen F.; Maloney, Carolyn B.; Markey, Edward J.; Massa, Eric J. J.; McGovern, James P.; McIntyre, Mike; Meek, Kendrick B.; Meeks, Gregory W.; Michaud, Michael H.; Moore, Dennis; Moran, James; Murphy, Tim; Murtha, John P.; Myrick, Sue Wilkins; Norton, Eleanor Holmes; Pascrell, Bill, Jr.; Payne, Donald M.; Platts, Todd Russell; Price, David E.; Radanovich, George; Richardson, Laura; Rooney, Thomas J.; Rothman, Steven R.; Roybal-Allard, Lucille; Rush, Bobby L.; Ryan, Tim; Salazar, John T.; Sanchez, Loretta; Schakowsky, Janice D.; Schrader, Kurt; Scott, Robert C. “Bobby”; Sessions, Pete; Shea-Porter, Carol; Shuler, Heath; Sires, Albio; Slaughter, Louise McIntosh; Smith, Adam; Smith, Christopher H.; Smith, Lamar; Snyder, Vic; Sullivan, John; Terry, Lee; Titus, Dina; Towns, Edolphus; Turner, Michael R.; Walz, Timothy J.; Watson, Diane E.; Watt, Melvyn L.; Whitfield, Ed; Wilson, Charles A.; Wittman, Robert J.; Wu, David; Yarmuth, John A.; Original Sponsor: Butterfield, G.K.
The United States calls July 4th Independence Day. I have always said as a Brian injury survivor I know what it’s like to have lost my independence. The day this is signed into law I call it Independence Day across the Nation for Brian injury survivor's. Thank you to everyone that has been involved in this history making moment for brain injury.