Online Ecosystem for #1 Cause of Death and Disability for American Youth New York, NY – The Sarah Jane Brain Foundation (SJBF) announced that WebMD will play an advisory role in developing the SJBF Virtual Center of Excellence. The Virtual Center is a central component of the National Pediatric Acquired Brain Injury Plan (PABI Plan) which establishes a seamless, standardized, evidence-based system of care that is universally accessible for the millions of American families with a child or young adult suffering from the leading cause of death and disability for American youth, brain injury. WebMD’s Medical Education subsidiary, Medscape Education, assisted SJBF and its International Advisory Board with updating the PABI Plan. The Virtual Center will function as a centralized, online ecosystem created for the pediatric acquired brain injury (PABI) community of families, health and education providers, and researchers. According to the PABI Plan, “Data management, communications, outcomes measures, and education are some of the technologies required to advance the continuum of care for those with PABI and their families, with the potential to help millions in need.” Patrick Donohue, Founder of The Sarah Jane Brain Foundation, said, “In order to leverage the full power of technology, we reached out to the leading industry experts to assist us and WebMD agreed to advise us regarding the technology required to help us change the world for Sarah Jane and the millions of our families that have a child with a brain injury. We are enormously grateful for their wisdom and guidance.” Patrick Donohue is the father of Sarah Jane Donohue who turned seven years old today and is the namesake of the Sarah Jane Brain Foundation.
“WebMD and Medscape Education are excited to partner with The Sarah Jane Brain Foundation in creating comprehensive educational resources on pediatric acquired brain injuries for patients, health care providers and educators,” said Dr. Steven Zatz, Executive Vice President, WebMD Professional Services. “The freely-accessible online resources and community will empower collaboration amongst patient families, care providers and researchers, and track outcomes over time.”
In order to view the updated National Pediatric Acquired Brain Injury Plan (PABI Plan), please visit www.TheBrainProject.org.
About The Sarah Jane Brain Foundation
The Sarah Jane Brain Foundation (SJBF) is a world-wide non-profit organization with a mission to change the world for the millions of families who have a child or young adult suffering from an acquired brain injury by advancing neuroscience and implementing the PABI Plan. For more information about SJBF, please read Patrick Donohue’s letter to his daughter and namesake of SJBF, Sarah Jane, when she turned five years old: www.TheBrainProject.org/lettertosarahjane.php.
The Sarah Jane Brain Foundation
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